I am 8 mos. out of treatment and I'm still way less than normal. I had to have a blood transfusion too. Then I had a setback last month when I had to have another biopsy and the ENT took a big chunk out of my tongue again. Thank goodness it was scar tissue and not a recurrence of cancer.

But I got a good lecture from the ENT when I went back for a followup. I'm not much of an eater to begin with, but I was gaining some weight before the biopsy and then I quit eating again because it hurt and I never felt hungry anyways. Well, he threatened to put me back on a PEG tube if I don't start eating and getting nourishment. He said my biopsy hole in my tongue was not healing and I would never get better unless I ate. Since I never want a PEG again, I am forcing myself to eat whether I want to or not. I got the message that nutrition is the best thing we can do for ourselves to get our energy back and to heal properly.


BOT-SCC Partial glossectomy 7/16/09.
Stage IV, Rt ND 10/2/09.
Teeth out 11/5/09.
Port/peg in, 11/20/09.
7 wks rad & chemo, end 1/22/10
lung, colon biopsies 1/9/11 - both cancer
colon resect surg 1/10/11
Folfox + Avastin - discontinued 6/11
lung surgery 3/13/12, 5/1/12
mets to liver and bones
passed away 9/4/13