 Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Tabitha,
Being a caregiver to us patients is one tough job and unfortunately it's only going to get worse for say 5 to 6 more weeks before it starts to get better. His job which becomes yours is to make this Tx as pain free as possible. In doing so he will be more able to consume the necessary calories (2500 to 3000) and hydration (48ozs minimum) each and every day and thereby reducing the severity of some of the side effects from this Tx. There are some side effects that neither of you can control like loss of taste and dry mouth but there are many that you both can keep at bay by proper amounts of "food" and water.
Please don't hesitate to ask any questions you may have or to just complain as we have all been there but the good news is we are all here to post about our experiences.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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