 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Pam welcome to OCF. Having the PEG tube isnt fun or easy but its something that can be done. We all hate the tube but realize its a necessity. Ive had mine for a total of 2 1/2 years. Living life is just a bit more complicated and takes more planning. I am lucky that I can eat some things by mouth like pudding, soup and yogurt. My tube useage has decreased where I think I will be tube free by the end of the year. Im sorry that your husband must be totally peg dependant. Wishing you both all the best with the tube. Read Charm's posts, he is in a similar situation and is very active.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | 
