Pam

Having a feeding tube does not mean the end of [quote]We were always very social people enjoying being with friends, dining and partying. [/quote]. First, you not only can but should continue as you always have. As a patient I don't want to feel that my cancer has now circumscribed my caregiver's life -[even though of course it does]. Second, your husband can consider working up to syringe feedings - not the ones shown on the Internet where patients hold up a syringe and let the goop drip down- but where you insert the syringe into the nutrient or Wine (my preference at parties, Beer fizzes although it's doable with patience) and push it down the feeding tube. [Flash: no contact with oral tissues and every doctor I've told says since it goes directly into the stomach it's just fine]
Even before I could manage jevity down the tube, wine worked.
Just last month my wife and I went to my combo 40th 8th grade/ 45th High School reunion pool party and we had a wonderful time, just like the other times even though I brought my cans of jevity and syringe. BTW, I've failed my Modified Barium Swallow test Four times even after 9 months of swallowing therapy including three months of VitaStim electrical stimulation . Yet, I'm doing fine and you and your husband can also. It will not be easy but we are not alone. Others before us did this also.
Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13