 Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | BIG CAUTION on the use of the PEG....he should only use it when he absolutely needs it except I guess to learn how to use and care for it. He needs to keep swallowing daily and keep his throat muscles active. There is the theory that if one doesn't use those muscles they "forget" how to work in a very short timeframe which can lead to a lifetime dependence on the PEG. Now I didn't get the PEG so I'm sure there will be PEG users that will provide their true experiences but IMO it's way to early to start using it.
Before each Cisplatin I was given a pill (Emend) which I took one a day for 3 days and then I was given fluids and more anti nausea meds in a drip right before the Cis bag.
I assume he is getting IMRT radiation?
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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