Hi All

I just wanted to report in and extend heartfelt thanks for the timeliness of the advice on this thread. I was up at some ungodly hour this morning unable to sleep (as often happens before my Alex sees his doctors and I have to sort through our issues and priorities).

Latest drama is the management of his ulcers and phlegm (pain and choking). He has stopped talking due to pain and banned me from the house. When he sees me, the phlegm goes berserk in anticipation of talking. This causes him to need to swallow which in turn causes more pain as well as choking. Communication at the moment is by text and email. It would be funny if it wasn't so pathetic (and he is a dreadful speller smile ).

Anyway, a couple of hours before the appointment, I came across this thread which reminded me to ask about Fentanyl. GP didn't even question it - wrote the script asked what else we needed (long acting oxcodone please and short acting oxycodone for breakthrough pain as per the experience of those on this site). Not a problem anything else? Umm well, yes, but a houseboat doesn't come on script does it?

Happy now, hope this helps Alex get through the next couple of weeks - he has done so well considering the early complications we had during induction chemotherapy. Alex is also happy because he feels like there is something else that he can do and even if it doesn't work, it gives him something to be able to control in his life, which for the last 6 months, has been totally at the mercy of others.

thanks everyone.
KLo


Karen
Love of Life to Alex T4N2M0 SCC Tonsil, BOT, R lymph nodes
Dx March 2010 51yrs. Unresectable. HPV+ve
Tx Chemo x 3+1 cycles(cisplatin,docetaxel,5FU)- complete May 31
Chemoradiation (IMRTx35 + weekly cisplatin)
Finish Aug 27
Return to work 2 years on
3 years out Aug 27 2013 NED smile
Still underweight