Patient Advocate (1000+ posts) Joined: May 2009 Posts: 1,412 | Barbara, I am so sorry you are going through this again. On the tongue swelling, mine swelled so bad that I had to go to the ER and get high powered steroids cause I could not even breathe and it was sticking out my mouth. Please, please, please keep us posted.
Angelia 31 at Dx. DX: 4/30/09, 10/21/09 SCC on floor of mouth, T1NOMO, T2N1M0 TX: 39 IMRT, 8 cisplatin 11/30/09 PET/CT: 11/03/09: Lymph node involvement PEG/PORT: 11/09 TX end: 02/01/10 PET Scan: 04/05/10 clear PEG Out: 06/21/10 Biopsy: 12/23/10: fibrosis HBO: 01/04/11 - ORN Baby girl born 11-30-12
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