 "OCF Down Under" Patient Advocate (1000+ posts)
Joined: Aug 2007 Posts: 1,301 | Hi Tony
I am sorry to hear that the news you got was not very good. Like others here say in the end the decision has to be yours but I wonder when I hear a statement like �I think jugular vein�!
My feeling is that you should only make that decision when you have all the facts.
I know CCC�s are few and far between in Australia but is there another one you can go to in WA for a second opinion. If not what about one in another state?
Please let us know what you decide and as you know the OCF family is here for you.
Love
Gabriele
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
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