Ed, you have come to the right place for lots of helpful information and compassion from people who have been through what you are experiencing. Some people have an easier time with treatment than others. I know my son (who is doing great, now, 4 years later) had sleep problems and the doctor gave him a sleep aid. At one point, he did have some swelling in his tongue causing breathing problems but in his case it was a reaction to a medication. THey gave him benedryl which made the swelling go down. This may not be what you are having a problem with, however and I'm sure you will hear from others very soon with some more direct experience. How great that your son is helping to get you reintroduced to the internet. It really does help to talk to others. Keep checking back here and let us know what's happening.