Hi Susie

I had the same operation 9 months ago. I believe that most people have a tracheotomy so that means no food and no talking for a while. This means you need to eat up now and enjoy what you are eating:) A patient opposite me was a doctor and he was very well organised. He held a large notebook on his chest and seemed to clutch a pen in his hand all the time. I was always losing my pen and had random bits of paper everywhere. A whiteboard would be good. It would also help to ask or read about the trach. I was puzzled by the suctioning (to clear the mucous).

I was a terrible patient because I seem to go crazy on morphine but I noticed a lot of other patients seem to doze in a morphine haze through the first few days. I was fine after a couple of weeks and haven't looked back. This surgery is unpleasant but it works.

I wish you all the best.


1996, ovarian cancer surgery + cisplatin and taxol.
September, 2007, SCC of left lateral tongue. Excision.
October, 2009 recurrence in scar tissue, T1NOMO. Free flap surgery from left wrist - neck dissection. 63 year old New Zealander. No chemo, no RT.
February, 2014. New primary in left buccal mucosa. Marginal mandibulectomy, neck dissection, right arm free forearm flap. T1N0M0 but third occurrence and some areas of concern: RT started 8 April and finished 19 May.