OP "Above & Beyond" Member (500+ posts) Joined: Jul 2008 Posts: 507 | This week I completed my two year check up routine about six week early. I'm off next week to Europe for a month.
My ENT reviewed my recent PET/CT with me. It looks good, some permanent scaring/narrowing issues to the esophagus but nothing else. So unless something changes; maybe no more PET/CT scans.
The ENT said his visual exam also looked real good and if he didn't know I had radiation he probably wouldn't pick it up. He says only an ENT would detect anything.
I asked about my somewhat saggy neckline and he said I could get a lift if I wanted, just let him know and he would get me to the right surgeon. This surprised me and is somewhat a 180 degree turn around, but he said my tissues are in really good shape.
He shifted me to appointments every three months, but other than saying I looked great wouldn't commit to an opinion on my long term outlook -- pointing out I had an unknown primary to begin with and although they did everything possible to find it, they really can't say how this all came about....(my Mom told me not to smoke in college!).
He pointed out the importance of sticking to my quarterly follow ups so if something does happen to show up they can find it quickly and get it out as soon a possible... and, of course I got the story about a patient who didn't -RIP.
Don TXN2bM0 Stage IVa SCC-Occult Primary FNA 6/6/08-SCC in node<2cm PET/CT 6/19/08-SCC in 2nd node<1cm HiRes CT 6/21/08 Exploratory,Tonsillectomy(benign),Right SND 6/23/08 PEG 7/3/08-11/6/08 35 TomoTherapy 7/16/08-9/04/08 No Chemo Clear PET/CT 11/15/08, 5/15/09, 5/28/10, 7/8/11
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