Awe Wendy!! ((((((HUGS))))))). You are not alone with these feelings. My sister had the same surgery and looked the sameway she is now 4 weeks out and still feels like a monster. She refused to look in the mirror in the hospital and I am in someway happy she didn't. I actually came home after seeing her in ICU and lost it. This cancer is so difficult because you guys feel disfigured even though another person really could not tell. As of now she looks wonderful as I am sure you do as well. But knowing in your mind what your tongue actually is seems like something that will be with you forever. The surgery that you both have endured was so invasive I know and you are a very strong person to get through it physically. Anything emotionally takes longer. Just remember that you are cancer free!!! Woohoo!!!! Yes your life is different emotionally and physically but that's because your a survivor and I envy you!!


CG to Sister (42). Smoker quit @ diagnosis Dx 4/20/10 SCC T2N0M0, Rside of tongue Hemigloss R neck dis, all nodes removed 6/2/10, Trach and NG in, home 6/8/10,8/18/2010 start erbitux x6, 30 IMRT end 10/11/10 with only 3x erbitux due to reaction and one week off of rads
1/10/2011 Clear PET!!!