IMO: PET scans are essentially worthless for tongue cancer patients since all they measure is sugar uptake and in my case, 4 times failed to distinguish normal tongue area tissue recovery from cancer. As bad as the false positives of a PETscan on Tongue cancer patients are, even worse were the false negatives those PETscans showed that lulled my doctors and myself into thinking my first TX was successful.
The head of the entire Nuclear Medicine department at my CCC took the time to sit down with me and show me screen by screen just how the colors and images worked and sure enough normal tissue that was healing did indeed look like cancer. They appear to be a great tool for almost every other type of cancer and even most oral cancer, but there is a solid basis for being "unsure about PET results" if you have tongue cancer. My doctors at the CCC are unanimous in having me get MRIs now instead of PETscans. Every MRI I have had has been 100% accurate.
Charm

Last edited by Charm2017; 07-08-2010 06:49 AM. Reason: typos

65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13