Senior Member (100+ posts) Joined: Dec 2009 Posts: 108 | Carol couldn't tolerate a couple of formulas then switched to Jevity 1.2 and tolerates that just fine. She started with bolus feedings then had to graduate to gravity feedings. Too much formula too fast made her nauseous and vomiting. The anti-nausea pills didn't work.
Just recently she wasn't able to do her feedings. She would vomit every time afterwords. She woke up one morning with her peg sucked into her abdomen. If it wasn't for the ports (Ross 18FR) it would have been totally gone! Come to find out the balloon had entered her bowel. Has anyone heard of such a thing? One of the nurses tried to blame it on us, "because it just doesn't happen". Needless to say, him and I got into a heated argument.....he's an arrogant SOB and doesn't play well with others. Carol now has a new PEG and doing wonderfully. We also fired her Primary Care Doctor, finally, and her new Doctor is great.
Charm is absolutely correct that the medical world doesn't provide much help or support when it comes to the PEG as in Carol's case. We learned everything about the PEG from this forum and googling. And, unfortunately, the patient has to do their own experimenting to get their nutrition intake.
Linda
CG/Carol 57;SCC Stage IV L Tonsil T4N2bM0 12/2009 Recur 7/2010 - 2cm mass Invasive SCC L Floor Lower Jaw Surgery 8/10 - Trach,ND,p. mandibulectomy,pec flap ypT4aN0 HG Mucoepidermoid carcinoma 2nd Recur 1/18/11 - Tumor lower left lip Surgery 2/9/11 - Canceled - Inoperable 3/29/11 - Died
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