Hello
My name is Mary
My sister, 36yrs old, was diagnosed with tongue cancer in march Left side (sorry i'm don't really know all the details). after maybe 3 months of having an ulcer that didn't go away. Being a new mum she thought it was stress and didn't have time to get it check out.

She had the first op couple of weeks later. pathology came back that the clearance was very good, except for one bit where it spiked and the clearance was only 1mm. The dr was confident that he got it all though.

A week later two lumps appear on her tongue, where the scar was. The Dr thought it was just scar tissue or a reaction to the stitching not dissolving entirely. Another wk went by and the lumps grew to about a finger knuckle each. A biopsy was done and it came back positive cancer.

She just had her second surgery a week ago. The clearance is about 1cm this time. She had a flap created via the inside of her cheek. Her tongue was attached to her cheek to let the tissue grow( !!??) and will be detach next week. I've been reading all your post and doesn't seem like anyone had a flap created in this way ( just an observation).

Because the cancer reappear so aggressively she's been really worried that she'll lose her tongue entirely. She hasn't ask the surgeon what that would mean as she doesn't want to think about it. I'd really like to know if that was the case, having to remove the entirely tongue, will the surgeon be able to create a new one? Will she be able to talk and eat?

She had and ultrasound to see if her nodes have changed and they haven't. Should she still insist on having a biopsy?

She is also seeing an oncologist about getting radiation. But after reading about all the side effects, I'm unsure if she should go with it especially because her nodes are in the clear (supposedly). Is it a sure bet that her teeth will fall out after radiation?
I'd love to get your opinions. Thanks
I'm so glad i found this forum