Senior Member (100+ posts) Joined: Jun 2009 Posts: 138 | My daughter calls me paranoid but I don't think so. I think I'm trying to be realistic. Everything I have read about Stage IV spreading to lymph nodes has been virtually a death sentence. I of course am hoping to be in the small percentage that survives, but I don't seem to be at a "lucky" point in my life right now so I really have a lot of fear about my prognosis. I know every case is different. I feel weird things going on in my mouth all the time and hoping it's just the after radiation effects. I see my ENT every six weeks but he can't promise me anything. He's just ready to biopsy anything he sees "suspicious" - so far so good, nothing suspicious. But it's a scary life we have to deal with after that Big C diagnosis.
BOT-SCC Partial glossectomy 7/16/09. Stage IV, Rt ND 10/2/09. Teeth out 11/5/09. Port/peg in, 11/20/09. 7 wks rad & chemo, end 1/22/10 lung, colon biopsies 1/9/11 - both cancer colon resect surg 1/10/11 Folfox + Avastin - discontinued 6/11 lung surgery 3/13/12, 5/1/12 mets to liver and bones passed away 9/4/13
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