Dwillson

I just read your other post and you have a great attitude plus an inspirational life story. wow, third time must be hard, I know the second time floored me harder than anything ever.

Erbitux rash is supposed to have a connection between intensity and efficacy. In other words, the worse the rash, the better it is doing. My RO thought I would never have the cancer come back as my reaction to Erbitux was the worst they have seen out of all the patients in my CCC. The key is to stay ahead of the skin damage. Lotions like aloe are fine at first, but start asking now for prescription speciality cremes like "SAF-Gel" or any variation of a "hydrating dermal wound dressing with alginate".
Unfortunately, I just stuck with aloe too long and ended up needing that fake burn skin, Vigilon. And don't forget, that I was a worst case scenario. Lots of posters here have had Erbitux and just normal rashes. Just monitor it daily and don't be afraid to speak up and ask for help. It was a Radiation Oncology nurse that finally helped us - she had seen so many Erbitux rashes that ended up with what she called "wooden soldier neck" - too painful to move the neck until she started getting the doctors to prescribe Saf-gel and Vigilon. You should be just fine if you stay on top of it. Good luck
Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13