I lost my voice completely for about 4 weeks. I suggest a bike horn for geting CG attention. LOL. For me, the steady decline the last two weeks of radiation were just reversed the first two weeks post radiation as I climbed back out of the dark. By the end of one month post tx my energy level was very good. Still took naps but was able to go a lot and do a lot. My respect goes out to you care givers.......you have your hands and hearts full. I love my husband so much more for his diligent, kind and loving care of me during the entire time.


DX 2/10/09; Stage 1 SCC side of tongue; Partial Gloss; PEG in 3/3/09; 3 Cisplatin; 35 IMRT; PEG out 7/17/09; Eating via mouth and walking 3 miles/day 4 wks after treatment end. 50 pound weight loss; Clear PET 09/09 and 09/10