| Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 8 | Welcome to OCF. Im sorry to read your story. Having to go thru this isnt easy. While trying to care for young children, its even more difficult.
My diagnosis was 6/09 and surgery was 8/09 for SCC of the jawbone. Ive had my jaw removed and a jaw made of steel put in its place. My first surgery was not successful and a second one was done a few days after. This was done in Lehigh Valley Hospital, Allentown PA. My surgery was done by my ENT along with his assistant and 2 plastic surgeons. There arent many who have had this operation. Im hoping you will hear from a few more people from around the country.
I am right there with you regarding the lack of teeth. I had mine removed in order to make dentures and then I got OC again and had to put that off. I can eat quite alot for someone who is without teeth. I eat jello, pudding, yogurt, soup, baked and mashed sweet potatoes and regular potatoes, cooked carrots, mashed baked beans, hot fudge sundaes, milkshakes, and mashed bananas. Do you have a feeding tube? Im interested in hearing if you are able to take in anything else than what I listed.
Best of luck to you. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive |