Hi, it is Jordan's Mom-Bailey. I had found this site early in her treatment and it took her a lil' while to want to come, but loved it once here. We found Miss Kate here and the 2 of them have bonded miraculously. Thanks to the site. 'Jordan'/Christa was diagnosed 12/29/06 and underwent IMRT 35 treatments. Chemo w/ Cisplatin and Erbotux. The Drs. felt they had it, well not quite. After her Esophagus was perforated during and EGD to remove her peg and dilate her esophagus the tumor was found to be there still. She suffered and aspiration pneumonia, needed to recover, a scare of mets on Pet which was ultimately the pneumonia. Had Surgery On Mon. 7/30/07 to resect her tongue and reconstruct. Initiallly had trach, then a simple only few node removal all looking fine/clean, but upon beginning resection found microcsopic tumor on Carotid artery. Surgeon stopped without any resection, told us chemo only option. We need further opinions. We would like to travel to MD ANDERSON preferably but am wonddering if anyone here has had similar story or knows Agressive surgeons there. Please, respond ASAP.
I think she will be going home in next few days and are willing to begin travel soon. I have begun the New Patient admission at MD Anderson.
We are from outside Chicago around Rockford, Ill.
She also had a surgical consult at U. of Chicago in June after re-discovering tumor. They seem to be familiar with carotid resection after speaking to our surgeons nurse there today.....
ANY input. She is the 31 y/o Mom of a 2 yr. old that Misskate speaks of in her recent post in her cancer blog. Help us........
Since negative nodes, it just seems it still should be resected.....not just chemo......