Patient Advocate (1000+ posts) Joined: May 2009 Posts: 1,412 | I still have my PEG and use it from time to time. I still have it as I can not chew any food without pain. When my family goes to eat I take my food with me and "eat" along with them. It took my a long time to get to the point that I coudl do that. Yes, I do get stares and people look at me, I just politely smile at them. It is amazing how many changes your body goes through. For me I can swallow fine one day and then the next day I can only get down water, because everything tlse stays at the top of the throat, but then the next I can swallow pudding again. Radiation, the gift that keeps on giving. It will get easier with time or at least it did for me.
Angelia 31 at Dx. DX: 4/30/09, 10/21/09 SCC on floor of mouth, T1NOMO, T2N1M0 TX: 39 IMRT, 8 cisplatin 11/30/09 PET/CT: 11/03/09: Lymph node involvement PEG/PORT: 11/09 TX end: 02/01/10 PET Scan: 04/05/10 clear PEG Out: 06/21/10 Biopsy: 12/23/10: fibrosis HBO: 01/04/11 - ORN Baby girl born 11-30-12
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