Pat,

Even though I was treated at Fox Chase, I really don't know anyone in the ENT department. As you can see by my signature, I had surgery only, no rads and no chemo and I was treated in the head & neck surgery dept.. Have you been to the Fox Chase website, www.fccc.edu and checked out the ENT?

You have gotten some very good advice from people that have been there and know what they are talking about.

You are on the right track now that you have been to a CCC like Fox Chase and I agree that you would be best to get at least one other opinion from another CCC. Eileen's suggestion of HUP and Christine's for JH are both great. Another possibility with you living in NJ would be Sloan Kettering in NYC.

My concern is that the delay in getting an appointment will delay your treatment for the ORN. You must impress upon the person you speak to, at whichever Center you call, that you have been told about your ORN and that you need to be seen immediately. In fact, call all 3 and see where you can get an appointment the soonest.

You may find that another institution will concur with the opinion from Fox Chase and then decide to go there. At least at that point, you should feel comfortable with any decision that you make.

I am so sorry that you have been through so much already and that you are now facing another difficult situation. Please keep us posted and if any questions come up, you can keep coming back here as often as you need to.