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| | Joined: Jun 2007 Posts: 10,507 Likes: 8 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 8 | Tracey: Welcome to OCF. Im so glad you have found this site to help guide you along. Right now is such a traumatic time for your family.
I agree with the other advice that was given.... Monday morning call the cancer center and get her in there immediately. While waiting for the appointment, make a list of questions, get a copy of her medical records. This would help her new doc and save lots of time. If the recurrance is spreading as quickly as what the docs say, then you dont have time to waste.
A year or two ago there was a new member who decided to quit going to radiation. Thru the efforts of OCF members encouraging her, she returned to treatment. She successfully finished all the radiation and was very greatful for all the support she received. She said without OCF she would have quit. This is an example of what a difference can be made by a group of people who have been thru the same thing. Please get her to agree to go to the cancer center.
I understand that you must choose your words carefully right now. Please think of it this way----those words you are holding back may save her life. I would suggest talking with her and calling the cancer center. You could even print out all the responses from OCF members and show her. Our responses are from people who have gone thru oral cancer as patients and their caregivers. Im close in age to your sister in law and Ive been thru the fight 3 times in 3 years!!!! If I can do it, anybody can. But they cant beat it if they dont try. When going to a doctor who doesnt have a game plan and time is of the essence, its critical for her to get to the cancer center immediately.
Please keep posting and let us know how she is doing. We are a big family here and welcome all.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | |
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