| Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 8 | Im sorry to read your post about Clark's struggles. Seems like when it rains it pours! Poor guy!!!!!
I dont have words of wisdom to help you with yoru decision. I know PET scans will light up when there is inflamation. A false positive can scare you to death!
Ive struggled myself with a wound left from my August surgery that just wont heal. My jaw bone has been exposed since Aug. Its interessting to me how Clarks doc will do surgery while my docs have tried all kinds of different methods to heal my open wound. My ENT doesnt want surgery on this area since its been exposed to radiation and would be resistant to healing.
Is a second opinion out of the question? Best of luck with whatever way you decide to go with this.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | 
