 "OCF Down Under" Patient Advocate (1000+ posts)
Joined: Aug 2007 Posts: 1,301 | Hello and welcome Archie's daughter. I am glad you have now posted and I know you will get a lot of good advise here.
To help people here who may have had or are having the same issues you need to let them know as many details as you can. I have taken the liberty of adding some of the details from your PM. I am sure you will get some good advice and I can guide you throught the signature bit later.
I have added some of the information you gave me below as it is very important to people trying to help you here...
Gabe
"dad has a squamous cell cancer at the back of the roof of his mouth just at the side of his left tonsil.They say he will only need Radiation as it is localised but they are radiating the lymph glands in his neck just incase. So we have asked today about the staging etc."
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
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