John is currently 10 months out of treatment and his "mouth feel" and taste buds are still not back all the way. He can taste sweets but foods he used to love he can't taste. He used to really enjoy his morning cup of coffee. He no longer drinks coffee at all because it tastes terrible to him. I know it is different for everyone.


Wanda (47) caregiver to husband John (56) age at diag.(2009)
1-13-09 diagnosed Stage IV BOT SCC (HPV+)
2-12-09 PEG placed, 7-6-09 removed
Cisplatin 7 weeks, 7 weeks (35) IMRT
4-15-09 - treatment completed
8-09,12-09-CT Scans clear, 4-10,6-11-PET Scans clear
4-2013 - HBO (30 dives) tooth extraction
10-2019 - tooth extraction, HBO (10 dives)
11-2019 - Left lateral tongue SCC - Stage 2