I'm so happy to have found this forum. It's now my safe haven! I'm the proud daughter (oldest of 5) of Karen. She is so brave; however, I imagine that's for display purposes only. I know she stays positive for her five children. It's been 2.5 years since she was diagnosed and her life changed forever. She has learned to live with a PEG, without a tongue, but most importanly without cancer! Unfortunately, I think that may have changed. Her November PET scan was clear, but having lost weight and not feeling well another scan was ordered and done in January. This one showed a hot spot in her mouth and spots on both her lungs. The doctor was quite honest and said he suspects both are cancer and are stage 4. We're awaiting a lung biopsy to confirm his suspicions. Everything I'm reading paints a bleak picture. Is this common to spread to the lungs??? Treatment options??? Anything at all is helpful! Thanks for letting me get all that off my chest.


Daughter/Karen-
Pre-exist cond: Erosive Lichen Planus
DX: 7/20 (age 52)-Stage IV SCC; Gloss (75% tongue), Rad Neck Dis w/6+ nodes positive, Par Mand Resec, Free Flap, PEG
8/20-11/07-Chemo/Rad
1/08-11/10-PET clear
1/10-PET showed hot spot in mouth, spots on both lungs. Awaiting lung biopsy