Deb

I am really sorry that you and Jim are having to deal with this horrid disease.



Suzanne

With respect, as a patient of this crap for nearly 3 years and also being my own caregiver, I certainly do not share your view that being a caregiver would be harder than being a patient.

I would switch positions any day if it was humanly possible and if I could find someone who would be willing to do so.

Karen

46 yrs:
Apr 07-SCC 80% entire tongue removed,T4N1M0
Neck/D,Jaw Split, Trache 2 ops,PEG 3.5yrs
30 x rad,6 x Cisplatin,
30 x HBO
Apr'08- flap Recon + ORN Mandibulectomy
(hip bone to reconstruct jaw)
Oct'08 1 Plate out-jaw
Mar'09 Debulk flap
Sep'09/Jan&Nov'10/Feb&Jun'11/Jan&Jul'12/Oct'13/April'14-More surgery