The light at the end of the tunnel is getting brighter. I have my last dose of cisplatin on Monday and my final 4 radiation treatments this week. I'm excited to start recovering from all these sores and mucus build-up and neck burns.

However, at my last check-up with my MO, she mentioned not to get too excited because we might continue chemo for the next few months. She hadn't completely decided, but one of the other MOs on her team very much recommended doing mop-up chemo. I don't think she said what type it would be, but she said we would start in a month or two and it would be once a month for a whole week. I would go in on a Monday, get 3 separate drugs, and the 3rd one would come home with me and then get removed on Friday. We would do this three times. My MO said she could see not doing it, as well, as it would be a good thing to have available in case I ever had another recurrence.

I'm wondering if this is all really needed. My scans have been clean since after surgery; however, I know my cancer is aggresive. I do want to hit it with everything, but I'm wondering if this is just overkill. I haven't seen many people's signatures with a monthly week-long chemo plan. Is this really something normally done? Is this something new?

With all of this, when I am considered in remission? My scans are clean already. Am I already in remission? Do I get to say I am in remission Thursday when I leave my final radiation appointment? Do I have to wait for this newly proposed chemo plan before I'm in remission?

Sorry for the rambling. I'm just wondering if anyone else out there had a similar treatment plan and if it's really necessary in my case.

Thanks for listening!


9.29.08: Dx @ 24 w/ T2 SCC, tongue
10.14.08: Partial gloss. & r. neck dissection. Margins/nodes all clear. No HPV. No rad.
10.06.09: Recurrence in l. lymphnode
11.16.09: L. neck dissection + lost nerve XII
12.28.09: 33xIMRT w/ concurrent 3xCisplatin (no PEG)
02.15.10: Done with treatment!