Platinum Member (300+ posts) Joined: Jun 2009 Posts: 440 | Eric,
I wanted to ask you if you use a PEG? I noticed your comment about Aly's tamales on FB (yummy!) and didn't realize you are eating by mouth. How much can you eat in one sitting and how long does it take? Can you eat just about anything? Was it always like that or did you have to work your way up with different foods/textures?
I see my speech drs at MDA in 2 weeks with another MBS, I feel like I've hit my best with trying to eat and its not getting better. It's only been a little over 4 months since tx ended so I know its still early, just getting discouraged, I'm hungry!!LOL
Dx 3/27/09 @ 28 years old with High Grade MEC T4N2M0 Elizabeth, 33, mother of 3 girls (4,7, &8yrs old) 3 rds of chemo(Carbo/Taxol) Rt Mandibulectomy, rt fibular flap,& rt ND with trach, picc,& g-tube. 30 rds of rads with weekly cisplatin SCANS ALL CLEAR! OCF Regional Coordinator of San Antonio Walk
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