 Platinum Member (300+ posts)
Joined: Jan 2009 Posts: 476 | Hi Chris and welcome. Sorry you have to be here but you found a GREAT place for support and information. I live in Delaware County in the Philly Burbs. Make a list of all your questions before you see the different doctors. Being the caregiver I tried to write down things as John would bring them up so we could talk to the doctors about them. It gets very overwheming when you have so many different doctors and so much information to take in. You sound like you have a positive attitude going into all this. Feel free to post any and all questions. Glad to hear you are getting the PEG. Even with it in my husband lost 30 lbs. I really don't know how he would have made it through without it.
Wanda (47) caregiver to husband John (56) age at diag.(2009)
1-13-09 diagnosed Stage IV BOT SCC (HPV+)
2-12-09 PEG placed, 7-6-09 removed
Cisplatin 7 weeks, 7 weeks (35) IMRT
4-15-09 - treatment completed
8-09,12-09-CT Scans clear, 4-10,6-11-PET Scans clear
4-2013 - HBO (30 dives) tooth extraction
10-2019 - tooth extraction, HBO (10 dives)
11-2019 - Left lateral tongue SCC - Stage 2
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