Rick,
Thank you for letting me know how things went for you at Roswell. I am talking to Dr. Rigual, ENT surgeon and Michele Cooper the PDT nurse. Is that who you saw?
About the pain � didn�t the hydrocodone and lidocaine swish handle it? Does that stuff only dull it?What part of your mouth did you have treated?
Have you chatted with anybody else who had PDT to the oral cavity? If you want to correspond directly, my email is mike@alpineview01.com.
Thanks,
Mike
age 53 TxN2bM0 stage IV tongue and 2 nodes, non smoker, non-drinker, heavy plastic wrap exposure 25+ years, 2 surgeries, neck dissection, 60 GY IMRT+ cisplatin X5 completed 07/09, new primary on tongue 11/09.