I went to University of Virginia Health Systems where I had my initial surgery in June. I did a new MRI and apparently a large area at BOM in the former surgical area is lit up with cancer.
My ENT ONC wants to do another surgery and the RO says radiation didn't work the first time, so doesn't recommend again.
I asked if they minded me seeking a 2nd opinion and they did not. They actually have set it up with John Hopkins in Baltimore. The nurseline at my insurance company recommended them.
I am hoping a doctor calls soon with an appointment. I think I lost 2 months when a resident took a biopsy from an area adjacent to but not at the former cancer site. The hospital seemed to find it more important to not admit to wrongdoing before finally retaking the biopsy from the area where they performed the initial surgery.
I am more frightened than I have ever been. In this scenario they want to remove teeth on the left side of my face. They want to remove jawbone to fix an area of bone they exposed and then a huge area of surgery to fix an radiation ulcer and cancerous area. Essentially all of the base of my mouth.

Has anyone here heard anything on how John Hopkins is with OC?


Age 52, T2 N0 M0 SCC of left anterior floor of mouth. Esophagoscopy, Direct laryngoscopy, Resection of left anterior FOM lesion w/ lateral tongue. left selective neck dissection levels I-IV. 5x6cm skin graft coverng excision. Finished 33-35 rad Tx. False recurrence 12-22-10 last surgery 2-15-10