I have not been active on this forum for a while but I received a lot of help from members in 2005 and 2006. I am thankful for that help.

My wife was diagnosed with T2N1MO SCC left lateral tongue in Jan 2005. She underwent surgery and completed 35 XRT radiation and 4 Cisplatin treatments in July 2005.

Life since has not been easy. She underwent additional tongue surgery at the tumor site in December 2006 to remove "hard tissue" which turned out to be scar tissue. She has had at least seven dilations of the esophagus for inability to swallow and multiple swallowing tests. She is still on morphine for mouth pain.

Her past yearly CT scans were clear. This year however the medical oncologist requested a PET/CT and we received the results this week which read as follows:

�Head/neck area: narrowing of the supraglottic trachea and loss of preepiglottic fat on the left side with increased soft tissue obliterating the left piriform sinus with moderate activity, SUVmax 5.4. In view of length of time from radiation and current symptoms, this finding is suspect for dyssynchronous primary neoplasm. Recommend direct visualization if not recently performed. Patient status post modified left neck dissection. There is fatty placement of left parotid gland. Unusually prominent right retromandibular vein. No pathological significant cervical adenopathy.�

The oncologist tried to reassure us that this could be scar tissue and that these reports have to be written a certain way due to legalities. Nonetheless, we are terrified by the findings.

We have an office visit scheduled with our ENT for next Tuesday. We are anxious.

I would appreciate hearing from other forum members who may have had similar experiences with PET/CTs.

Thank you for your help. It is much appreciate it.


CG to wife;
Jan 2005 DX SCC Tongue T2N1MO; RND surgery Mar 2005; 35 XRT and 4 cisplatin completed Jul 2005.
Dec 2006 tongue surgery, Scar tissue no cancer.
Feb 2010 neck node FNA - negative.
2010 ORN right jaw plus fracture
2015 ORN left jaw plus fracture
Feb 2016 Lower jaw reconstruction by Fibula free flap+titanium plate - Permanent G-tube
June 2016 Difficulty breathing - Permanent Trachea tube
Dec 2019 DX Cervical cancer - Stage 1 - Surgery Jan 16 2020.
15-20 esophagus/larynx dilations