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| | | Anonymous Unregistered | | Anonymous Unregistered | Sorry for the misspelling last time.
I don't know if my family is just doomed or if there simply are no competent people in the state of FL. It is obvious that my mother is late-stage OC but getting her started on some treatment seems to be impossible.
At the second ENT consultation Tuesday, they wanted to schedule an ultrasound liver biopsy to determine what kind of cells are in the tumor (squamous or lung). They tried to get it done the same day but that didn't work. The nurse gave me my mother's lung CT to give to them when the biopsy was scheduled. They indicated it would probably be Wednesday. No phone calls Wednesday so I called. "Oh,the person who schedules that is out today. Call back Thursday". Must be nice to be so important. Called Thursday - "Gee, I'll have to see what is going on". Finally found out late Thursday that they don't think it's amenable to ultrasound, probably CT but they need the films that I have. Now we get to wait until next week when they get the film. We also asked about seeing a medical oncologist and were told it's too soon. They wait any longer and my mother will die before getting any treatment.
I don't think going to an ENT was the best choice for my mother because the two that we've gone to have no interest unless it involves surgery. But I don't feel confident in medical oncologists to know enough about body systems to be making the recommendations of treatment. The theory of the multidisciplinary approach is good in theory but the practice breaks down somewhere along the way.
To compound this, my mother gets angry at me when I point out the error of their ways. They say ignorance is bliss but it can also be deadly.
That is my venting for now. These battles are beginning to wear on me.
Cynthia | | |
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