Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | Actually the few weeks POST Tx will most likely be the WORST part of his Tx so at least prepare him for it. He will probably get his last chemo on the last day of radiation and his body will be naturally very weak from all the previous rads and chemo and the effects of everything, physical and mental, just seem to combine for nearly all of us to make those 3 weeks or so post Tx our worst. Some say the radiation still "cooks" our cells comparing it to a microwave after you turn it off but I don't think I've ever heard a technical medical explanation but I do know after experiencing it myself and hearing from countless others on this site, it's real, whatever the cause.
I called it walking out of my dark tunnel when I finally started to feel better 3 weeks post Tx. It was like one day I woke up and I just knew something was better, like the day when you know your cold is finally going away. Even then he will experience set back days but eventually they will give way to the better days.
Also prepare him (when he's up to it mentally) that his recovery may well take all of 2 years.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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