EZ Jim,

Do you have pain? What is your course of treatment? I know that my husband faces a long journey. I am so afraid of what is ahead as eventually he will have to endure chemo for CLL...probably by end of next year. He doesn't even have a doctor that is taking charge of him...it's all done thru the various specialists who, I doubt, even talk to each other about him. Yes, we have an HMO...but we've been very happy with the care he's received up to now. I feel we are in limbo with no one really looking out for him. I am going to send a letter to his radiation onc.. Right now he is under the care of the UCLA dental school for his jaw. They work with HN cancer patients referred by our HMO.
Siouxbee

Husband diagnosied in 06/2003 (57 yrs old)with SCC base of tongue T1N2b. In 06/2003 started chemoradiation (35 radiation + 3 chemo). In Nov. 2003 had right neck dissection. No cancer recurrence but currently suffering from osteonecrosis.