hi Dave,

the saliva thing has been a surprise to me. for years i took 3 or 4 salagan pills each day. about 18 months ago, my mouth was wet enough that i reduced the intake to 1/d. things were still good and seemed to improve. recently i upped the dosage to 2 or 3/d. i got a big boost. .. enough so that i can now go a few hours without my water bottle. i've even left home without it and not panicked.

my plan is to increase\decrease the dosage on time scales of a couple of months to see what happens. now i can frequently open my mouth and see fluid spanning from the roof to my tongue.

i still can't eat most thing without drinking something.. but i really do sense a continued improvement.

this seems contrary to what i've read and been told about saliva improvement after treatment... i switched to generic salagen and found no noticeable difference.


'01 diagnosis.. jaw hing and base of tongue. surgery not possible. JHU used radiation and chemo to seemingly rid me of the beast. peg for about 19 months. 100 cases of 24 cans of liquid food. 9 months eating therapy. 3x esophagus stretches. non-smoker. previously a social drinker.