Patient Advocate (1000+ posts) Joined: May 2009 Posts: 1,412 | Charm, I appreciate you not stepping on my blog. I enjoy these tense conversations. I have not even had this PEG for a week, and I already hate it. I have had nothing but pain with it. It is hard for me to walk, breathe, stand, sit. Anything where I use my stomach muscles, it hurts. If I had ti to do over again I do not think I would get it. Anyway, I was only doing what the Drs told me to do. Now I feel like i have lost control of everything.
Angelia 31 at Dx. DX: 4/30/09, 10/21/09 SCC on floor of mouth, T1NOMO, T2N1M0 TX: 39 IMRT, 8 cisplatin 11/30/09 PET/CT: 11/03/09: Lymph node involvement PEG/PORT: 11/09 TX end: 02/01/10 PET Scan: 04/05/10 clear PEG Out: 06/21/10 Biopsy: 12/23/10: fibrosis HBO: 01/04/11 - ORN Baby girl born 11-30-12
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