 "OCF Down Under" Platinum Member (300+ posts)
Joined: Mar 2008 Posts: 404 Likes: 2 | I have had a PEG tube for 2 years and 8 months and I hate it so much.
As I am still having ongoing treatments, which require more surgery, and being unable to swallow for a week or two following each surgery, the PEG stays until all my surgeries are completed.
I went from 116 (53kg) pounds down to 83 (38kg) pounds during radiotherapy and chemo treatments and I understood that I needed it, but that doesn't mean that I was happy about it, because I wasn't. I wasn't really given a choice by my medical team. I was only suppose to have a PEG for about 6 months max!!
Summer has started a little early here and with temperatures already around 93 degrees (34C). Once again, there will be no swimming for me this year or even being able to sit in a hot tub - due to the possibility of infections with a PEG... to me the PEG is a huge deal.
Karen
Last edited by Karen Rose; 11-19-2009 05:12 PM.
46 yrs:
Apr 07-SCC 80% entire tongue removed,T4N1M0
Neck/D,Jaw Split, Trache 2 ops,PEG 3.5yrs
30 x rad,6 x Cisplatin,
30 x HBO
Apr'08- flap Recon + ORN Mandibulectomy
(hip bone to reconstruct jaw)
Oct'08 1 Plate out-jaw
Mar'09 Debulk flap
Sep'09/Jan&Nov'10/Feb&Jun'11/Jan&Jul'12/Oct'13/April'14-More surgery
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