 Platinum Member (300+ posts)
Joined: Jan 2009 Posts: 476 | Kyle, there are no medals or awards given out to the few who manage to get through treatments without a PEG. Even with a PEG in my husband lost 30 lbs. He was very reluctant to get the PEG but his RO, MO and ENT all INSISTED he get one before treatment ever started. Thank God he did or I doubt he would have gotten through treatments without being severly malnourished or hospitalized for dehydration. He forced himself to swallow water every day so he didn't loose the ability to. His doctors explained to him that the body responds much better to treatments if you are getting the nourishment and hydration you need. My husband was so extremely nauseas for weeks from the mucus and Cisplatin that I can't imagine how he would have been able to get enough nourishment in orally. Good luck.
Wanda (47) caregiver to husband John (56) age at diag.(2009)
1-13-09 diagnosed Stage IV BOT SCC (HPV+)
2-12-09 PEG placed, 7-6-09 removed
Cisplatin 7 weeks, 7 weeks (35) IMRT
4-15-09 - treatment completed
8-09,12-09-CT Scans clear, 4-10,6-11-PET Scans clear
4-2013 - HBO (30 dives) tooth extraction
10-2019 - tooth extraction, HBO (10 dives)
11-2019 - Left lateral tongue SCC - Stage 2
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