Kyle, I luckily was spared the chemo ordeal but I did do 6 weeks of IMRT, preceded a month earlier by a radical neck dissection. I elected not to get a PEG and now, months later, regret it. At the time it seemed like a good decision, especially as I had a crisis during my neck surgery and almost didn't wake up, necessitating an emergency tracheotomy. So I was a little gunshy about another operation.

But the second half of RT and the two months or so following were such an ordeal - mouth and throat full of sores, swallowing disfunction, etc. - that in retrospect the PEG would've made life a lot easier. And maybe helped me keep on some of the 30 pounds I lost.

If you have a choice, I'd advise going with the PEG.

Good luck to you both!
David 2


David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 14 years all clear in 6/23 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18