OP Senior Member (100+ posts) Joined: May 2009 Posts: 114 | I was in the TOMO machine 5 days a week and 2-3 of those days the machine broke down while it was treating me. I had delays at the end but I am concerned about being inside while I am being radiated and the machines would fault and need to be restarted. They would leave me under that damn mask until they got it working again. They would tell me that it could not harm me, but they said I would be fine through this. Now I have something that can be potentially worse than the cancer?
I don't want anyone cutting on my jaw and removing teeth. They told me I could keep my teeth when I was considering taking them out. So why is it not so at this point? They want to look after a month to see if I heal any. My complaint for months was that everthing is getting worse. Everyone wrote my complaints off as being caused by treatments and original surgery. Sorry. I am so over this. It's alright to talk about oxygen chambers and surgery while they don't have the balls to help with pain issues now. To me, I cannot help but think something was wrong and I got burned as a result of it. That is why I am trying to find out the experience of others. What is the norm? I have lost faith in at least one team of doctors.
Last edited by hisnibs; 11-12-2009 09:43 PM.
Age 52, T2 N0 M0 SCC of left anterior floor of mouth. Esophagoscopy, Direct laryngoscopy, Resection of left anterior FOM lesion w/ lateral tongue. left selective neck dissection levels I-IV. 5x6cm skin graft coverng excision. Finished 33-35 rad Tx. False recurrence 12-22-10 last surgery 2-15-10
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