 "Above & Beyond" Member (500+ posts)
Joined: Apr 2007 Posts: 794 | Hi Jim,
It was so nice talking to you last night, I am sorry if it caused you great pain. In spite of all you are going through, you remain so sound-I admire that so much!!
Good luck tomorrow, someone must have an idea. My mom asked me to check if you are on Neurontin? This is a medication that helps control seizures, it has helped with all the nerve endings flaring up on her tongue. Call her anytime to compare notes! I will send you a pm with her phone number.
Lots of love and prayers to you. Please keep us posted, you have so many who have missed hearing from you.
Love,
Donnarose
Donna
CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
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