Hi Mark. Welcome but sorry you have to be here. My husband presented almost exactly as you did only he had 1 really big malignant lymph node in his neck. He had no throat discomfort or any indication besides the swollen lymph node that there was something wrong. He had a neck disection along with tons of scoping before treatment began. John had a PEG which was a lifesaver. Even with the PEG he lost 30 lbs. which he couldn't afford to loose so eat, eat, eat while you can. John didn't have a port as his chemo was only once a week. He does have permanent hearing loss from the chemo (Cisplatin) but so far is cancer free and doing great. Treatment is rough but this cancer is very aggressive and my husband's doctors wanted to blast it with everything they could.

These boards have tons of information and very caring people. Feel free to ask any and all questions. As a caregiver I can suggest that you might want to get your wife involved with the boards. Being a caregiver is so difficult especially when things with treatment get really rough.


Wanda (47) caregiver to husband John (56) age at diag.(2009)
1-13-09 diagnosed Stage IV BOT SCC (HPV+)
2-12-09 PEG placed, 7-6-09 removed
Cisplatin 7 weeks, 7 weeks (35) IMRT
4-15-09 - treatment completed
8-09,12-09-CT Scans clear, 4-10,6-11-PET Scans clear
4-2013 - HBO (30 dives) tooth extraction
10-2019 - tooth extraction, HBO (10 dives)
11-2019 - Left lateral tongue SCC - Stage 2