OP  Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | My remarks include not only information about my ordeal and it's HPV connection but gruesomely detailed descriptions of the terminal part of our cancer as well as some statistics on OC overall. I have also included some wisdom from Brian so he can feel as if he were there like I'm sure he would want to. I still haven't finished it yet. By coincidence I am taking another employee with breast cancer to Moffitt for her first meeting with her surgeon tomorrow so I plan to have lunch with Dr Guiliano so we can compare our remarks to make sure we don't overlap and waste our precious time. I want to correct one thing I said in Margaret's reply post and that is the FDA has just recently licensed the Gardasil male vaccine so now this Committee's recommendation will have a greater immediate effect if they advocate a Strong recommendation.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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