I was too mad yesterday to post anything. I called teh ENT MOnday because when i woke up Monday morning the jaw pain was such that I could barely open my mouth. That isn't goo when you are teacher, well it might be for the kids, but not the teacher. I worked it lose enough so I could talk. Eating was another story. Anyway when he nurse called me back, she said that the Dr. said it was probably just TMJ and to take Tylenol 30 minutes before I eat. Well, I was in the middle of class so I could not talk long. That afternoon I called back and asked how would I tell the difference with the ear pain? When my call was returned I got the response, "it will be hard to tell, that is why we are having you come in for frequent visits" I had hard time trying not to get upset, because I was babysitting at the time. Anyway, I am going to a Dr. on Thursday that deals with TMJ so he can rule that out. I am also in the process of looking for another opinion. The thing is my insurance is screwy and to see on oncologist I have to have preauthorization from my PCP, and she will want me to come in just to see me. More money out the door. I think it is all about the money to some of these people. The pain has subsided quite bit now, but I am noticing a dull achy ear pain when I am reading to my kids. If he was the least bit worried, why wouldn't he have done the biopsy instead of watching? UGH!!!!!!!!!


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12