Brian, thank you for the info. It never ceases to amaze me that there is almost always someone that has been there and able to share. Pam has had a couple of swallow studies and was cleared for thin liquids but I think she has been drinking much more over the past couple of months, so maybe it is just accumulating faster than she can expel it.

By coincidence her MO called today regarding some questions I had on clinical studies and I had asked er about the PEG leakage and received almost verbatim your response.

Thanks again.


Tom-CG to wife, Pam 46@dx
Stage IV Tongue Cancer T2N2C
Dx 6/08, Surgery 7/08, 3 nodes positive
9/08 33IMRT/7Carbo/Taxol
4/09 node biopsy positive, mets to lungs/stomach
5/09 Cisplatin or Cis/Alimta study
6/09 Cis/Taxotere
9/09 Taxotere
1/10 Xeloda
3/10 Cetuximab weekly
6/29/10 lost battle