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| Joined: Aug 2008 Posts: 100 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Aug 2008 Posts: 100 | Well I am feeling lost. It seems most times I can make sense of what is going on. On Pam's last PET/CT scan there was some new activity in her lungs. After that PET they gave her a round of Taxotere to buy another three weeks to get another CT to determine what was happening in her lungs and what course of action to take. Last week they took the CT and it showed the new activity had expanded to both lungs, looking like "ground glass nodularity". After the MO discussed with the person reading the CT, they determined that they believe the CT was showing that Pam had aspiration pneumonia even though she is not showing any typical symptoms of pneumonia. They have prescribed antibiotics, given her another round of Taxotere and plan on doing another PET/CT in three weeks before the next round of chemo to determine how to proceed.
I think I somewhat understand all that but have mixed reactions to the CT reading. I believe it is good that it is not showing the cancer spreading that fast in her lungs but also concerned because of the dangers of pneumonia. Isn't that one of the major ways that people die from this disease? She has been having a horrible time with the antibiotics causing diarhea. Also, several times after receiving chemo, she has had leakage around her PEG tube. Once before it had a red tinge that made it appear that it was bloody and again today it is leaking what looks like blood.
I guess I would like to hear if others have had leakage around the PEG following chemo and if you have ever had the leakage appear to be blood.
The other thing would be your opinions on the dangers of aspiration pneumonia and if you have ever had scans showing this "ground glass" like appearance and if it turned out to be an infection or cancer.
Thanks,
Tom-CG to wife, Pam 46@dx Stage IV Tongue Cancer T2N2C Dx 6/08, Surgery 7/08, 3 nodes positive 9/08 33IMRT/7Carbo/Taxol 4/09 node biopsy positive, mets to lungs/stomach 5/09 Cisplatin or Cis/Alimta study 6/09 Cis/Taxotere 9/09 Taxotere 1/10 Xeloda 3/10 Cetuximab weekly 6/29/10 lost battle
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