I am sorry to hear that you are still experiencing so much pain. My mom is now two years out and still has pain, and there is a small spot on her jaw bone that has suffered from necrosis. My moms RO has her on neurontin which is a med used typically for seizures. I see that you had hbot, did you find that helped with your pain?
My heart aches for you, for all here, who want to have their pain under control. I know my mom is waiting to wake up one day and not feel any pain...to just be normal.
I'm sure others will be on offering you support, Ezjim is another member here who had the implants and is going though hbo now.
You have found a terrific source for support here. Welcome to OCF.
Donna


Donna
CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.